Improving paediatric palliative care for rural and remote families: a randomised controlled exploratory study of videotelephony

INTERVENTION: Access to usual support plus education, communication, counselling and monitoring with specialist multidisciplinary team members via videotelephone for the duration of palliative care. Information will be collected for the duration of palliation to a maximum of 6 months CONDITION: Paediatric oncology palliative care PRIMARY OUTCOME: Parental health related quality of life as measured using the Medical Outcome Survey (MOS) Short Form SF‐12 v2 SECONDARY OUTCOME: Family finacial costs Health care utilisation Parent reported patient quality of life Parent reported sibling quality of life Parental informational and emotional support Parental perceived stress Parental satisfaction with care INCLUSION CRITERIA: Paediatric oncology patients aged 2‐18 years from regional and remote areas requiring palliative care.