Psychosocial Situation of Children With Rare (Congenital) Pediatric Surgical Diseases and Their Families

Category Primary study
Registry of Trialsclinicaltrials.gov
Year 2020
Families of children with rare diseases (i.e., not more than 5 out of 10.000 people are affected) are often highly burdened with fears, insecurities and concerns regarding the affected child and his/her siblings. The aim of the present research project is to examine the psychosocial burden of the children with rare (congenital) pediatric surgical diseases and their family in order to draw attention to a possible psychosocial care gap in this population.
Epistemonikos ID: a11cb8347608cc65433d6149f87ebe4d01dfeac3
First added on: Jan 10, 2022