Caregivers Preparing for Their Own Health Care Emergency

Authors
Category Primary study
Registry of Trialsclinicaltrials.gov
Year 2024
The goal of this clinical trial is to help spousal caregivers of people with dementia be prepared in the case of their (the caregiver\'s) own health emergency, and ensure that in their absence, the person with dementia receives the care they need. Specifically, we are evaluating an online Emergency Preparedness Toolkit (EPT) with and without tailored coaching. The main questions it aims to answer are: * Does the online EPT in combination with tailored coaching increase the success of spousal caregivers in completing the EPT, compared to the EPT alone? * Does the online EPT in combination with tailored coaching increase the success of spousal caregivers in identifying and engaging a standby caregiver, compared to the EPT alone? * Does the online EPT with tailored coaching increase spousal caregiver preparedness, confidence, and self-efficacy compared to the EPT alone? * What other barriers do spousal caregivers face when identifying and engaging a standby caregiver for their spouse with dementia? There are 2 cohorts in this study. 1. Cohort 1: Usability Testing: Prior to the start of enrollment into the randomized controlled trial, approximately 10 caregivers will participate in a preliminary developmental phase where the usability and functionality of the online EPT will be evaluated. 2. Cohort 2: Clinical Trial: Approximately 68 caregivers will be enrolled into the randomized controlled trial. These caregivers will be randomized 1:1 to one of two groups: * EPT-A Group: This group will complete the EPT alone, with no assistance from a coach. However, technical support will be provided as needed. * EPT-C Group: This group will complete the EPT with the assistance of a trained coach. Technical support will also be provided as needed.
Epistemonikos ID: 8dc9c8870ed4faf5d0f508e70962ac44961b5b61
First added on: Nov 01, 2024