A psycho-educational Intervention program for children of patients with hereditary dementia

Category Primary study
Registry of TrialsANZCTR
Year 2021
INTERVENTION: According to the interest in the population studied we decided to only perform one intervention session that will consist in 1 face‐to‐face session of 2 hours addressed to clear the doubts of the genetic counseling performed and to increase emotional intelligence and coping strategies. The genetic counseling will be administered by a psychologist trained in the genetic disease. The methods/strategies would be a general psycho‐educational program where the description of emotional intelligence will be given, specifying what are the positive and negative emotions, how to identify them, how to identify the causes of these emotions and how can we modify the negative emotions by identifying the cause and changing the psycho‐emotional pattern that resulted in that emotion. For coping strategies to better manage the stress, will be addressed to identify the problems os stressors that can be modified, and those that can not be modified. For those that can be modified, the participants will be encouraged to adopt and active copping strategy, which is addressed to plan the steps to solve the problem. For those that can not be modified the adaptive coping strategy of acceptance will be encouraged. CONDITION: Early onset Alzheimer disease; ; Early onset Alzheimer disease Neurological ‐ Alzheimer's disease Neurological ‐ Dementias PRIMARY OUTCOME: Depression measured with the CESD‐IS instrument[1 week after the last session] Stress measured with the scale of perceived stress of Cohen[1 week after the session ] SECONDARY OUTCOME: The intention to take a pre‐diagnostic test, which will be assessed by a simple question with 4 options: yes, no, may be later and I do not know [1 week after the last session ] INCLUSION CRITERIA: Children of patients diagnosed with Early Onset Alzheimer disease Be aware of the diagnosis of the affected parent Older than 18 years old Have no symptoms of the disease That accept to participate in the study
Epistemonikos ID: 7db03737dbaa4a1718adf73e28029dcdb2137ad5
First added on: Aug 25, 2024