Rolling it out: Intervention to improve driving cessation outcomes for people with dementia and their families across metropolitan and regional areas

INTERVENTION: The CarFreeMe for people with dementia is a comprehensive support and education based intervention to improve driving cessation outcomes for people with dementia and their family members. The intervention includes seven modules that cover education and practical support, delivered by a health professional who is trained in, for example, occupational therapy, psychology, or nursing, and who is experienced in working in community care with older adults with dementia and their family members. Health professionals, trained in delivery of CarFreeMe, will deliver the intervention to people with dementia and their families in their homes and/or community settings. The intervention is individualised according to geographic location and the particular needs and preferences of participants and is intended to be flexible. The individualised program involves a combination of one‐to‐one sessions, groups, practical outings and activities with a local experienced health professional, as well as home‐based independent written and verbal activities. Delivery will involve 7 x 1 hour sessions, once per week for 7 weeks. CONDITION: community mobility / lifespace dementia social isolation wellbeing PRIMARY OUTCOME: Lifespace / Community mobility collected via a study provided Smartphone using passive collection of GPS data. GPS data will be collected for a seven day period at each of three timepoints. In addition lifespace is measured with the Lifespace Questionnaire (Stalvey, Owsley, Sloane, & Ball, K. 1999) at each of three timepoints. These measures will be augmented with collecting the 'number of episodes away from home during the past week' at each of three time points. SECONDARY OUTCOME: Anxiety, measured by the Geriatric Anxiety Index (Pachana, N., Byrne, G., Siddle, H., Koloski, N., Harley, E., & Arnold, E. 2007). Caregiver strain measured by the Caregiver Burden Index. Depression, measured by the Geriatric Depression Scale (Yesavage, J., Brink T., & Rose, 2000). Individual Goal Setting will be conducted with participants, using the Canadian Occupational Performance Measure (Law et al., 1998) Readiness for Mobility Transition measured by Assessment of Readiness for Mobility Transition (ARMT):A Tool for Mobility Transition Counseling (MTC) ; Self‐efficacy measured by the Caregiver Transport and Lifestyle Self Efficacy item (Liddle, J., Sidhu, R., Gustafsson, L., & Pachana, N. 2015) Wellbeing measured by the Personal Wellbeing Index (Cummins, Eckersley, Pallant, Van Vugt, & Misajon. 2003). INCLUSION CRITERIA: (1) the person with dementia will be eligible to participate if he/she has mild to moderate dementia (Mini‐Mental State Examination score 12‐26 (inclusive), or clinical diagnosis), is living in the community, has ceased driving or plans to cease driving in the next six months and driving cessation is an issue for him/her, and is able to provide informed consent for participation (or have a guardian able to do so) and has a family member/carer able to participate in the trial; (2) family members will be eligible to participate if they identify as the main person providing ongoing informal care of the person with dementia