French Registry of Children Treated With Norditropin® for Short Stature Associated With Noonan Syndrome

Authors
Category Primary study
Registry of Trialsclinicaltrials.gov
Year 2022
This is a non-interventional registry of children treated with Norditropin® for short stature due to Noonan Syndrome (NS). This study aims to provide data on long-term growth evolution and safety of Norditropin® as well as Health Related Quality of Life (HRQoL) data. This registry will include the entirety of children treated with Norditropin® for short stature due to NS over the inclusion period. The decision to initiate treatment with commercially available Norditropin® is made by the patient/parents/Legally Acceptable Representative (LAR) and the treating physician before and independently from the decision to include the patient in this study.
Epistemonikos ID: 47e669c3bcb7169b796a0e7a1e662b106267a84d
First added on: May 13, 2024