The Appendix Cancer PMP Research Foundation Natural History Study/Patient Registry

ACPMP\'s first-ever patient-powered global patient registry/natural history study collects patient and caregiver information and data to fuel clinical trials and drive breakthroughs for appendix cancer and PMP. We\'ve invested the time and resources to make our Registry regulatory grade. Our Registry operates under active, ongoing Institutional Review Board (IRB) oversight by independent ethicists. It is powered by NORD\'s IAMRARE®, an industry gold standard platform built to be consistent with FDA\'s best thinking on natural history studies.