EndoSMS: A text message supportive program for individuals with endometriosis

INTERVENTION: ENDOTEXT is a text messaged based intervention that provides supportive messages to individuals living with endometriosis. Messaging covers a range of domains including general endometriosis information, lifestyle tips and self‐care. Participants will receive four semi‐personalised text messages (e.g., to their preferred name) per week, free of charge, for a period of three months with messages selected from the ENDOTEXT message bank according to their user characteristics (e.g., smoker vs. non‐smoker). Each message is very brief ‐ a maximum of 50 characters and should take less than 1 minute to read. CONDITION: Endometriosis;Quality of Life; ; Endometriosis ; Quality of Life Reproductive Health and Childbirth ‐ Other reproductive health and childbirth disorders PRIMARY OUTCOME: Endometriosis‐specific quality of life assessed with the reliable and valid Endometriosis Health Profile Questionnaire‐30 (EHP‐30; Jones et al., 2006)[3 months post baseline] SECONDARY OUTCOME: Emotional health measured using the widely used and validated short‐version of the original DASS, the Depression, Anxiety and Stress Scales 21 item (DASS‐21; Lovibond & Lovibond[3 months post baseline] Self‐efficacy for managing endometriosis symptoms, daily activities, medication/treatment and social interactions, assessed by the reliable and valid PROMIS Self‐Efficacy for Managing Chronic Conditions Short‐Form 4‐item subscales (Cella et al., 2010; Lee et al., 2020). [3 months post baseline] The Perceived Consequences subscale of the valid and reliable Revised Illness Perception Questionnaire (IPQ‐R; Moss‐Morris et al., 2002) is a 6‐item measure which will be used to assess endometriosis severity[3 months post baseline] User acceptability (e.g., messages easy to understand) is assessed via a self‐report online survey using Likert‐type questions (i.e., along a scale from Not at all to Very Much so). These questions are derived from questions used in prior research by this team: ; Sherman KA, Shaw LK, Jørgensen L, Harcourt D, Cameron L, Boyages J, Elder E, Kirk J, Tucker K. Qualitatively understanding patients' and health professionals' experiences of the BRECONDA breast reconstruction decision aid. Psychooncology. 2017 Oct;26(10):1618‐1624. doi: 10.1002/pon.4346. Epub 2017 Jan 30. PMID: 27957772. ; and ; Singleton, A., Partridge, S., Raeside, R., Regimbal, M., Hyun, ; K., Chow, C., Sherman, K., Elder, E., Redfern, J. (2019). A text ; message intervention to support women's physical and mental ; health after breast cancer treatments (EMPOWER‐SMS): a ; randomised controlled trial protocol. BMC Cancer, 19(1), 1‐8. ; doi ="http://dx.doi.org/10.1186/s12885‐019‐5886‐8"[3 months post baseline] INCLUSION CRITERIA: Participants are eligible to participate if they are: over 18 years of age; clinically diagnosed with endometriosis; proficient in English; have access to the internet and a mobile phone; resident in Australia