Testing a new model of community based palliative care

Authors
Category Primary study
Registry of TrialsANZCTR
Year 2020
INTERVENTION: Community based palliative care patients randomised to the intervention arm will have their care managed by a care coordinator (clinical nurse specialist). Once stable they will receive weekly contact to identify any new symptoms or needs and they will be addressed as necessary. If required, patients can access assistant in nursing support in their home during unstable periods. The duration and frequency of the intervention will be based on needs identified. All interventions will be based in the patient's residence in person. The total duration of the study will be 12 months or until end of life. CONDITION: Public Health ‐ Health service research Terminal illness;End of life;Community based care;Palliative Care;End of life care; ; Terminal illness ; End of life ; Community based care ; Palliative Care ; End of life care PRIMARY OUTCOME: Number of days spent in preferred location using routine data collection from the department of palliative care. [At end of life or end of the study period] SECONDARY OUTCOME: Emergency department presentations, hospital or hospice admission[At any time during the study period, as collected by medical record review.] Patient reported experience measure[Quarterly or until end of life] Place of death[End of life] Quality of life assessed using Euro Quality of Life (EQ5D‐5L) score[Quarterly post‐intervention commencement for 12 months or until end of life] Staff professional quality of life and experience as collected by ProQOL and qualitative interview[ProQOL will be conducted at baseline and study end. Qualitative interviews will be conducted at study end.] INCLUSION CRITERIA: New referral to palliative care, based in the community and intending to receive their care at home and consent to participate in research
Epistemonikos ID: 085f10739633630e1afdb335548cac46fbd18bb8
First added on: Aug 24, 2024