The Meaning of Meals to Patients and Family Carers at the End of Life:

INTERVENTION: 6‐8 page interactive booklet with information about eating related distress and mechanisms for readers (patients or family carers) to become more self aware about how they contribute to this psychosocial distress, and suggestions for how to address this distress. The way the participants read the booklet will not be monitored; however, post‐intervention questions include one assessing for how long the participant read the intervention booklet. The experimental group participants will be given the intervention booklet at Time 1, and then after they have had it 1‐3 weeks, they will be given the Time 2 questionnaires. CONDITION: Eating related distress at the end of life PRIMARY OUTCOME: decreased eating related distress (as measured by Memorial Symptom Assessment scale eating related items‐distress response (significant decrease in mean from pre‐ to post‐intervention) SECONDARY OUTCOME: decrease in mean dyadic discord as measured by Couple Satisfaction Index‐4 INCLUSION CRITERIA: hospice patient or primary family carer of; 18 years or older; able to understand spoken English